Study Investigates the Challenge of Documenting End-of-Life Preferences

Detailed instructions reflecting the wishes of people facing serious advancing illness offer family and health care providers valuable guidance for end-of-life care.

But the basic process of collecting that information—from the design of standardized forms to procedures used to complete them—varies greatly from state to state and at individual health care settings. Those operational details can have a dramatic impact on the quality of information collected and the usefulness of the instructions themselves.

Kathrin Boerner, an associate professor of gerontology at UMass Boston’s McCormack Graduate School, used detailed interviews with team members at 2 Massachusetts nursing homes to study policy and practice associated with gathering information about end-of-life care wishes. Boerner, along with UMass Boston assistant sociology professor Jason Rodriquez and 2 other co-authors, recently published their findings in the journal Geriatric Nursing. Continue reading